International Diaphragmatic & Hiatus Hernia, Eventration & Abdominal wall Anomalies Alliance

Welcome to IDEA Alliance

We are a collaboration of patient organisations from around the world who want to work together and support each other for better patient experiences and outcomes for Congenital Diaphragmatic Hernia, Congenital Hiatus Hernia, Eventration of the Diaphragm, Gastroschisis and Omphalocele, through support, education, awareness or research.



Find useful patient and family information and support.


Find useful information about how we can help Clinicians and the best way for you to contact us.


Find all things research related, such as articles, research funding, call outs and more.

Join our alliance

We would love for you to join our growing alliance! Joining is easy and free for the first 12 months.

Calling us or entering your information onto our webform will require us to process your personal data. Please refer to our Privacy Policy for further details.

Our Members

Our members are our IDEA and without them and their important input our alliance could not exist.

We all have the desire to collaborate through our similar aims and goals. The idea is to improve outcomes and experiences for patients and their families. Our members are patients, organisations and Clinicians and we would love you to join us!

“By bringing experts together and supporting each other, we can truly make a difference to patient outcomes all over the world, whether that be better diagnosis, improved treatments or quality of life. Our data can help with research and our knowledge can help with patient support and public information.”
Beverley Power - CDH UK